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My name is Yamile Jackson, Ph.D. in engineering and the mom of Zachary, a former micro-preemie now in college. He survived the deluge from Tropical Storm Allison in Houston, Texas, in 2001 that shut down the hospital and his life-support equipment. He was evacuated after nine hours of effort by the NICU staff and us. Zachary changed NICUs twice - one under emergency and the other by our own choice.
I promised to give back to the NICU community on behalf of Zachary and I founded Nurtured by Design. Given the significant differences in cultures and practices of both NICUs that cared for Zachary and hundreds of NICUs I have visited in the last 20 years, I am partnering with four exceptional professionals to try to understand better the role of NICU service providers (e.g., nurses, doctors, therapists, volunteers, specialists, administrative staff, etc.) in parents' experiences and satisfaction and, if given a choice, would they select the same providers.
The goal is to inform healthcare decision-makers and providers of better service system design, including parent engagement as a vital element of the care process.
We have created a 15-20 min online survey that gathers information about the parental experience and the involvement in the care for their babies in the neonatal intensive care unit.
Your participation will be priceless, and as a token of appreciation for completing the survey we will raffle six $50 Amazon gift cards.
If you have general questions about your rights as a participant in this or any other research, or if you wish to discuss problems, complaints, concerns or questions about your participation in this research, you may contact Dr. Todd Arnold, E-mail: firstname.lastname@example.org, Tel: 918-594-8596
To learn more and participate, please click the button below:
Please note that we sincerely understand that thinking back to the beginning of the NICU experience may trigger some unexpected and unpleasant thoughts or feelings. Please only proceed if you feel ready. You may withdraw from the survey at any time and for any reason without penalty. Simply close the browser page.
Please invite your friends that are former NICU parents in the USA by sharing this link: https://thezaky.com/pages/research
This is the team of investigators for this research:
Steven Rayburn, Ph.D.
Suzanne C. Makarem, Ph.D.
Mayoor Mohan, Ph.D.
Todd Arnold, Ph.D.
Yamile Jackson, Ph.D., P.E., P.M.P.